A qualitative study of perceptions of meaningful change in spinal muscular atrophy

Abstract Background This qualitative study examined how individuals with Spinal Muscular Atrophy (SMA), their caregivers, and clinicians defined meaningful change, primarily in the Type II and non-ambulant type III patient populations, associated with treatment of this condition. In addition, we exp...

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Bibliographic Details
Main Authors: Sarah McGraw, Ying Qian, Jeff Henne, Jill Jarecki, Kenneth Hobby, Wei-Shi Yeh
Format: Article
Language:English
Published: BMC 2017-04-01
Series:BMC Neurology
Subjects:
Online Access:http://link.springer.com/article/10.1186/s12883-017-0853-y