Quality of life data for individuals affected by spinal muscular atrophy: a baseline dataset from the Cure SMA Community Update Survey

by Lisa Belter, Rosángel Cruz, Jill Jarecki
Published 2020-08-01

“I have SMA, SMA doesn’t have me”: a qualitative snapshot into the challenges, successes, and quality of life of adolescents and young adults with SMA

by Allison Mazzella, Mary Curry, Lisa Belter, Rosángel Cruz, Jill Jarecki
Published 2021-02-01

The SMA Clinical Trial Readiness Program: creation and evaluation of a program to enhance SMA trial readiness in the United States

by Ilse Peterson, Rosángel Cruz, Fatou Sarr, Ann Marie Stanley, Jill Jarecki
Published 2020-05-01

Awareness screening and referral patterns among pediatricians in the United States related to early clinical features of spinal muscular atrophy (SMA)

by Mary Curry, Rosángel Cruz, Lisa Belter, Mary Schroth, Megan Lenz, Jill Jarecki
Published 2021-05-01

Economic burden of spinal muscular atrophy: an analysis of claims data

by Lisa Belter, Rosángel Cruz, Sierra Kulas, Emily McGinnis, Omar Dabbous, Jill Jarecki
Published 2020-01-01

A qualitative study of perceptions of meaningful change in spinal muscular atrophy

by Sarah McGraw, Ying Qian, Jeff Henne, Jill Jarecki, Kenneth Hobby, Wei-Shi Yeh
Published 2017-04-01

Correction to: Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’...

by Tina Duong, Jessica Braid, Hannah Staunton, Aurelie Barriere, Fani Petridis, Johannes Reithinger, Rosangel Cruz, Jill Jarecki, Mencia De Lemus, Nicole Gusset, Ria Broekgaarden, Sharan Randhawa, Jessica Flynn, Rob Arbuckle, Sonia Reif, Lida Yang, Angela De Martini, Carole Vuillerot
Published 2021-09-01

Understanding the relationship between the 32-item motor function measure and daily activities from an individual with spinal muscular atrophy and their caregivers’ perspective: a...

by Tina Duong, Jessica Braid, Hannah Staunton, Aurelie Barriere, Fani Petridis, Johannes Reithinger, Rosangel Cruz, Jill Jarecki, Mencia De Lemus, Nicole Gusset, Ria Broekgaarden, Sharan Randhawa, Jessica Flynn, Rob Arbuckle, Sonia Reif, Lida Yang, Angela De Martini, Carole Vuillerot
Published 2021-03-01