Measuring patient experiences in Fabry disease: validation of the Fabry-specific Pediatric Health and Pain Questionnaire (FPHPQ)

Measuring patient experiences in Fabry disease: validation of the Fabry-specific Pediatric Health and Pain Questionnaire (FPHPQ)

<p>Abstract</p> <p>Introduction</p> <p>Common symptoms for children with Anderson-Fabry Disease (FD) such as acroparaesthesia and gastrointestinal manifestations can only be objectively assessed in patients using a valid instrument. To date, no such instrument exists.&l...

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Bibliographic Details
Main Authors: Ramaswami Uma, Stull Donald E, Parini Rossella, Pintos-Morell Guillem, Whybra Catharina, Kalkum Gisela, Rohrbach Marianne, Raluy-Callado Mireia, Beck Michael, Chen Wen-Hung, Wiklund Ingela
Format: Article
Language:English
Published: BMC 2012-09-01
Series:Health and Quality of Life Outcomes
Subjects:
Fabry disease
Enzyme replacement therapy
Children
Paediatric Health and Pain Questionnaire
Psychometrics validation
Online Access:http://www.hqlo.com/content/10/1/116

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http://www.hqlo.com/content/10/1/116

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