Measuring patient experiences in Fabry disease: validation of the Fabry-specific Pediatric Health and Pain Questionnaire (FPHPQ)

by Ramaswami Uma, Stull Donald E, Parini Rossella, Pintos-Morell Guillem, Whybra Catharina, Kalkum Gisela, Rohrbach Marianne, Raluy-Callado Mireia, Beck Michael, Chen Wen-Hung, Wiklund Ingela
Published 2012-09-01