Ethics approval in applications for open-access clinical trial data: An analysis of researcher statements to clinicalstudydatarequest.com.

by Derek So, Bartha M Knoppers
Published 2017-01-01

From Banking to International Governance: Fostering Innovation in Stem Cell Research

by Rosario Isasi, Bartha M. Knoppers
Published 2011-01-01

Of Screening, Stratification, and Scores

by Bartha M. Knoppers, Alexander Bernier, Palmira Granados Moreno, Nora Pashayan
Published 2021-07-01

Data sharing in the post-genomic world: the experience of the International Cancer Genome Consortium (ICGC) Data Access Compliance Office (DACO).

by Yann Joly, Edward S Dove, Bartha M Knoppers, Martin Bobrow, Don Chalmers
Published 2012-01-01

Genomic Sequencing Capacity, Data Retention, and Personal Access to Raw Data in Europe

by Shaman Narayanasamy, Varvara Markina, Adrian Thorogood, Adriana Blazkova, Adriana Blazkova, Mahsa Shabani, Bartha M. Knoppers, Barbara Prainsack, Barbara Prainsack, Robert Koesters
Published 2020-05-01

Where Next for Genetics and Genomics?

by Chris Tyler-Smith, Huanming Yang, Laura F Landweber, Ian Dunham, Bartha M Knoppers, Peter Donnelly, Elaine R Mardis, Michael Snyder, Gil McVean
Published 2015-07-01

Consent Codes: Upholding Standard Data Use Conditions.

by Stephanie O M Dyke, Anthony A Philippakis, Jordi Rambla De Argila, Dina N Paltoo, Erin S Luetkemeier, Bartha M Knoppers, Anthony J Brookes, J Dylan Spalding, Mark Thompson, Marco Roos, Kym M Boycott, Michael Brudno, Matthew Hurles, Heidi L Rehm, Andreas Matern, Marc Fiume, Stephen T Sherry
Published 2016-01-01

Women’s Views on Multifactorial Breast Cancer Risk Assessment and Risk-Stratified Screening: A Population-Based Survey from Four Provinces in Canada

by Cynthia Mbuya Bienge, Nora Pashayan, Jennifer D. Brooks, Michel Dorval, Jocelyne Chiquette, Laurence Eloy, Annie Turgeon, Laurence Lambert-Côté, Jean-Sébastien Paquette, Emmanuelle Lévesque, Julie Hagan, Meghan J. Walker, Julie Lapointe, Gratien Dalpé, Palmira Granados Granados Moreno, Kristina Blackmore, Michael Wolfson, Yann Joly, Mireille Broeders, Bartha M. Knoppers, Anna M. Chiarelli, Jacques Simard, Hermann Nabi
Published 2021-02-01

Risk-Stratified Approach to Breast Cancer Screening in Canada: Women’s Knowledge of the Legislative Context and Concerns about Discrimination from Genetic and Other Predictive Heal...

by Samuel Alarie, Julie Hagan, Gratien Dalpé, Sina Faraji, Cynthia Mbuya-Bienge, Hermann Nabi, Nora Pashayan, Jennifer D. Brooks, Michel Dorval, Jocelyne Chiquette, Laurence Eloy, Annie Turgeon, Laurence Lambert-Côté, Jean-Sébastien Paquette, Meghan J. Walker, Julie Lapointe, Palmira Granados Moreno, Kristina Blackmore, Michael Wolfson, Mireille Broeders, The PERSPECTIVE I&I Study Group, Bartha M. Knoppers, Anna M. Chiarelli, Jacques Simard, Yann Joly
Published 2021-07-01

Creating a data resource: what will it take to build a medical information commons?

by Patricia A. Deverka, Mary A. Majumder, Angela G. Villanueva, Margaret Anderson, Annette C. Bakker, Jessica Bardill, Eric Boerwinkle, Tania Bubela, Barbara J. Evans, Nanibaa’ A. Garrison, Richard A. Gibbs, Robert Gentleman, David Glazer, Melissa M. Goldstein, Hank Greely, Crane Harris, Bartha M. Knoppers, Barbara A. Koenig, Isaac S. Kohane, Salvatore La Rosa, John Mattison, Christopher J. O’Donnell, Arti K. Rai, Heidi L. Rehm, Laura L. Rodriguez, Robert Shelton, Tania Simoncelli, Sharon F. Terry, Michael S. Watson, John Wilbanks, Robert Cook-Deegan, Amy L. McGuire
Published 2017-09-01