Open Access Data Sharing in Genomic Research

by Stacey Pereira, Richard A. Gibbs, Amy L. McGuire
Published 2014-08-01

Beyond Our Borders? Public Resistance to Global Genomic Data Sharing.

by Mary A Majumder, Robert Cook-Deegan, Amy L McGuire
Published 2016-11-01

Should police have access to genetic genealogy databases? Capturing the Golden State Killer and other criminals using a controversial new forensic technique.

by Christi J Guerrini, Jill O Robinson, Devan Petersen, Amy L McGuire
Published 2018-10-01

Donors, authors, and owners: how is genomic citizen science addressing interests in research outputs?

by Christi J. Guerrini, Meaganne Lewellyn, Mary A. Majumder, Meredith Trejo, Isabel Canfield, Amy L. McGuire
Published 2019-11-01

Principal Investigator Views of the IRB System

by Simon N. Whitney, Kirsten Alcser, Carl Schneider, Laurence B. McCullough, Amy L. McGuire, Robert J. Volk
Published 2008-01-01

Do privacy and security regulations need a status update? Perspectives from an intergenerational survey.

by Stacey Pereira, Jill Oliver Robinson, Hayley A Peoples, Amanda M Gutierrez, Mary A Majumder, Amy L McGuire, Mark A Rothstein
Published 2017-01-01

Behavioral and psychological impact of genome sequencing: a pilot randomized trial of primary care and cardiology patients

by Kurt D. Christensen, Erica F. Schonman, Jill O. Robinson, J. Scott Roberts, Pamela M. Diamond, Kaitlyn B. Lee, Robert C. Green, Amy L. McGuire
Published 2021-08-01

Challenges to Building a Gene Variant Commons to Assess Hereditary Cancer Risk: Results of a Modified Policy Delphi Panel Deliberation

by Mary A. Majumder, Matthew L. Blank, Janis Geary, Juli M. Bollinger, Christi J. Guerrini, Jill Oliver Robinson, Isabel Canfield, Robert Cook-Deegan, Amy L. McGuire
Published 2021-07-01

The Human Microbiome Project: a community resource for the healthy human microbiome.

by Dirk Gevers, Rob Knight, Joseph F Petrosino, Katherine Huang, Amy L McGuire, Bruce W Birren, Karen E Nelson, Owen White, Barbara A Methé, Curtis Huttenhower
Published 2012-01-01

Pediatric Oncologists’ Experiences Returning and Incorporating Genomic Sequencing Results into Cancer Care

by Rebecca L. Hsu, Amanda M. Gutierrez, Sophie K. Schellhammer, Jill O. Robinson, Sarah Scollon, Richard L. Street, Alyssa N. Salisbury, Stacey Pereira, Sharon E. Plon, Janet Malek, D. Williams Parsons, Amy L. McGuire
Published 2021-06-01

Researcher Perspectives on Data Sharing in Deep Brain Stimulation

by Peter Zuk, Clarissa E. Sanchez, Kristin Kostick, Laura Torgerson, Katrina A. Muñoz, Rebecca Hsu, Lavina Kalwani, Demetrio Sierra-Mercado, Demetrio Sierra-Mercado, Jill O. Robinson, Simon Outram, Barbara A. Koenig, Stacey Pereira, Amy L. McGuire, Gabriel Lázaro-Muñoz
Published 2020-12-01

Psychological Distress Among the U.S. General Population During the COVID-19 Pandemic

by Christi J. Guerrini, Sophie C. Schneider, Andrew G. Guzick, Gifty N. Amos Nwankwo, Isabel Canfield, Isabel Canfield, Savitri Fedson, Savitri Fedson, Amanda M. Gutierrez, Jessica C. Sheu, Amber Y. Song, Alexandra M. Villagran, Amy L. McGuire, Eric A. Storch
Published 2021-06-01

Predispositional genome sequencing in healthy adults: design, participant characteristics, and early outcomes of the PeopleSeq Consortium

by Emilie S. Zoltick, Michael D. Linderman, Molly A. McGinniss, Erica Ramos, Madeleine P. Ball, George M. Church, Debra G. B. Leonard, Stacey Pereira, Amy L. McGuire, C. Thomas Caskey, Saskia C. Sanderson, Eric E. Schadt, Daiva E. Nielsen, Scott D. Crawford, Robert C. Green, for the PeopleSeq Consortium
Published 2019-02-01

Patient, Caregiver, and Decliner Perspectives on Whether to Enroll in Adaptive Deep Brain Stimulation Research

by Simon Outram, Katrina A. Muñoz, Kristin Kostick-Quenet, Clarissa E. Sanchez, Lavina Kalwani, Richa Lavingia, Laura Torgerson, Demetrio Sierra-Mercado, Demetrio Sierra-Mercado, Jill O. Robinson, Stacey Pereira, Barbara A. Koenig, Philip A. Starr, Aysegul Gunduz, Aysegul Gunduz, Kelly D. Foote, Michael S. Okun, Wayne K. Goodman, Amy L. McGuire, Peter Zuk, Gabriel Lázaro-Muñoz
Published 2021-10-01

Research ethics recommendations for whole-genome research: consensus statement.

by Timothy Caulfield, Amy L McGuire, Mildred Cho, Janet A Buchanan, Michael M Burgess, Ursula Danilczyk, Christina M Diaz, Kelly Fryer-Edwards, Shane K Green, Marc A Hodosh, Eric T Juengst, Jane Kaye, Laurence Kedes, Bartha Maria Knoppers, Trudo Lemmens, Eric M Meslin, Juli Murphy, Robert L Nussbaum, Margaret Otlowski, Daryl Pullman, Peter N Ray, Jeremy Sugarman, Michael Timmons
Published 2008-03-01

The BabySeq project: implementing genomic sequencing in newborns

by Ingrid A. Holm, Pankaj B. Agrawal, Ozge Ceyhan-Birsoy, Kurt D. Christensen, Shawn Fayer, Leslie A. Frankel, Casie A. Genetti, Joel B. Krier, Rebecca C. LaMay, Harvey L. Levy, Amy L. McGuire, Richard B. Parad, Peter J. Park, Stacey Pereira, Heidi L. Rehm, Talia S. Schwartz, Susan E. Waisbren, Timothy W. Yu, The BabySeq Project Team, Robert C. Green, Alan H. Beggs
Published 2018-07-01

Creating a data resource: what will it take to build a medical information commons?

by Patricia A. Deverka, Mary A. Majumder, Angela G. Villanueva, Margaret Anderson, Annette C. Bakker, Jessica Bardill, Eric Boerwinkle, Tania Bubela, Barbara J. Evans, Nanibaa’ A. Garrison, Richard A. Gibbs, Robert Gentleman, David Glazer, Melissa M. Goldstein, Hank Greely, Crane Harris, Bartha M. Knoppers, Barbara A. Koenig, Isaac S. Kohane, Salvatore La Rosa, John Mattison, Christopher J. O’Donnell, Arti K. Rai, Heidi L. Rehm, Laura L. Rodriguez, Robert Shelton, Tania Simoncelli, Sharon F. Terry, Michael S. Watson, John Wilbanks, Robert Cook-Deegan, Amy L. McGuire
Published 2017-09-01