Falling short : the psychosocial impact of living with Russell-Silver syndrome
We do not know what it means to live with Russell-Silver syndrome (RSS), as currently there is a dearth of literature exploring the lived experience of this rare genetic condition characterised by pre and postnatal growth retardation. Discovering how this syndrome affects the lived experience will p...
| Main Author: | |
|---|---|
| Published: |
University of the West of England, Bristol
2017
|
| Subjects: | |
| Online Access: | https://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.714995 |