Consent, choice and children in research : exploring decision making by parents of children with Duchenne muscular dystrophy considering participation in genetic research projects

Background: Informed consent is a concept that is fundamental to the ethical inclusion of individuals in medical research projects. Theoretical and ethical analyses of consent has focused on important criteria including voluntariness, competence, provision of information, recommendation, understandi...

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Bibliographic Details
Main Author: Henderson, Alex
Published: University of Newcastle Upon Tyne 2008
Subjects:
361
Online Access:http://ethos.bl.uk/OrderDetails.do?uin=uk.bl.ethos.485599