Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation
Abstract Background Public and patient involvement in the design of people-centred care and research is vital for communities whose needs are underserved, as are people with rare diseases. Innovations devised collectively by patients, caregivers, professionals and other members of the public can fos...
Main Authors: | Cláudia de Freitas, Vanessa dos Reis, Susana Silva, Paula A. Videira, Eva Morava, Jaak Jaeken |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2017-09-01
|
Series: | BMC Health Services Research |
Subjects: | |
Online Access: | http://link.springer.com/article/10.1186/s12913-017-2625-1 |
Similar Items
-
The dialogic construction of patient involvement in patient-centred neurorehabilitation
by: Jannie Uhre
Published: (2018-12-01) -
Person-centred care in osteoarthritis and inflammatory arthritis: a scoping review of people’s needs outside of healthcare
by: Jessica L. Fairley, et al.
Published: (2021-04-01) -
What do young people with rheumatic disease believe to be important to research about their condition? A UK-wide study
by: Suzanne Parsons, et al.
Published: (2017-07-01) -
The development of a scheme of Public & Patient Involvement (PPI) in the Wales Cancer Research Centre (WCRC) and reflections on the process
by: Jim Fitzgibbon, et al.
Published: (2020-09-01) -
Preference‐based patient participation for most, if not all: A cross‐sectional study of patient participation amongst persons with end‐stage kidney disease
by: Caroline Martinsson, et al.
Published: (2021-10-01)