Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation

Public and patient involvement in needs assessment and social innovation: a people-centred approach to care and research for congenital disorders of glycosylation

Abstract Background Public and patient involvement in the design of people-centred care and research is vital for communities whose needs are underserved, as are people with rare diseases. Innovations devised collectively by patients, caregivers, professionals and other members of the public can fos...

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Bibliographic Details
Main Authors: Cláudia de Freitas, Vanessa dos Reis, Susana Silva, Paula A. Videira, Eva Morava, Jaak Jaeken
Format: Article
Language:English
Published: BMC 2017-09-01
Series:BMC Health Services Research
Subjects:
Public and patient involvement
People-centred care
Patient-oriented research
Needs assessment
Social innovations
Rare diseases
Online Access:http://link.springer.com/article/10.1186/s12913-017-2625-1

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http://link.springer.com/article/10.1186/s12913-017-2625-1

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