Measuring the impact of hemophilia on families: Development of the Hemophilia Family Impact Tool (H‐FIT)
Abstract Introduction This study aimed to assess the impact of hemophilia on families, in the context of current and emerging hemostatic therapies, and explore the need for a hemophilia‐specific tool targeted at parents of boys aged <4 years. A secondary aim was to develop and validate the new to...
Main Authors: | , , , , , , , , , , |
---|---|
Format: | Article |
Language: | English |
Published: |
Wiley
2021-05-01
|
Series: | Research and Practice in Thrombosis and Haemostasis |
Online Access: | https://doi.org/10.1002/rth2.12519 |