Enhancing Value and Uptake for Whole-Population Cohorts of Children and Parents: Methods to Integrate Registries into the Generation Victoria Cohort

Enhancing Value and Uptake for Whole-Population Cohorts of Children and Parents: Methods to Integrate Registries into the Generation Victoria Cohort

Health registries are critical to understanding, benchmarking and improving quality of care for specific diseases and conditions, but face hurdles including funding, bias towards clinical rather than population samples, lack of pre-morbid and outcomes data, and absent cross-registry harmonisation an...

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Bibliographic Details
Main Authors: Valerie Sung, Katrina Williams, Ella Perlow, Yanhong J. Hu, Susannah Ahern, Joanne M. Said, Bill Karanatsios, John L. Hopper, John J. McNeil, Leo Donnan, Sharon Goldfeld, Melissa Wake
Format: Article
Language:English
Published: MDPI AG 2021-04-01
Series:Children
Subjects:
research methodology
registries
registry trials
population studies
GenV (Generation Victoria)
children
Online Access:https://www.mdpi.com/2227-9067/8/4/285

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https://www.mdpi.com/2227-9067/8/4/285

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