A Study of Information Needs and Information Behaviors of the Primary Caregivers of Children and Adolescents with Rare Diseases
Rare diseases by definition do not occur often and it is difficult to provide palliative care for those affected due to the lack of information and treatment for those rare diseases. The families of those with rare diseases bear a heavy burden and have a harder time than even the families of disable...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
National Taiwan University
2016-12-01
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| Series: | Journal of Library and Information Studies |
| Subjects: | |
| Online Access: | https://jlis.lis.ntu.edu.tw/files/journal/j43-5.pdf |