Evaluation of neurofibromatosis type 1 progression using a nationwide registry of patients who submitted claims for medical expense subsidies in Japan between 2008 and 2012

Evaluation of neurofibromatosis type 1 progression using a nationwide registry of patients who submitted claims for medical expense subsidies in Japan between 2008 and 2012

Abstract Background No study to date has followed disease progression in patients with neurofibromatosis type 1 (NF1), including the incidence of various manifestations, using a national registry. Here we examined the state of NF1 progression using a nationwide registry of patients who submitted cla...

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Bibliographic Details
Main Authors: Takashi Yamauchi, Machi Suka, Chikako Nishigori, Hiroyuki Yanagisawa
Format: Article
Language:English
Published: BMC 2019-07-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Intractable rare disease
Neurofibromatosis type 1
Progression
Follow-up
National registry
Medical expense subsidies
Online Access:http://link.springer.com/article/10.1186/s13023-019-1148-8

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http://link.springer.com/article/10.1186/s13023-019-1148-8

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