The relationship between quality of life and coping strategies of children with EB and their parents

Abstract Background Epidermolysis bullosa (EB) is a group of rare genetic skin disorders that primarily manifest as blisters and erosions following mild mechanical trauma. Despite the crucial role of the parents of children with EB in managing the disease, studies focusing on the parent–child relati...

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Bibliographic Details
Main Authors: Petra J. Mauritz, Marieke Bolling, José C. Duipmans, Mariët Hagedoorn
Format: Article
Language:English
Published: BMC 2021-01-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Online Access:https://doi.org/10.1186/s13023-021-01702-x