Patient knowledge, experiences and preferences regarding retinoblastoma and research: A qualitative study

Abstract Background We launched a patient engagement strategy to facilitate research involvement of the retinoblastoma (childhood eye cancer) community in Canada. To inform our strategy, we aimed to uncover the experiences with retinoblastoma, knowledge of retinoblastoma and research engagement amon...

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Bibliographic Details
Main Authors: Catherine Moses, Kaitlyn Flegg, Helen Dimaras
Format: Article
Language:English
Published: Wiley 2020-06-01
Series:Health Expectations
Subjects:
Online Access:https://doi.org/10.1111/hex.13043