A coordinated transition model for patients with cystinosis: from pediatric to adult care

Introduction: Improved outcome and longer life expectancy in patients with cystinosis and the intrinsic complexity of the disease, underline the need for a guided transition of patients from pediatric to adult care. The process aims to guarantee the continuum of care and enable the empowerment of pa...

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Main Authors: Gema Ariceta, Juan Antonio Camacho, Matilde Fernández-Obispo, Aurora Fernández-Polo, Josep Gámez, Judit García-Villoria, Enrique Lara, Pere Leyes, Nieves Martín-Begué, Manel Perelló, Guillem Pintos-Morell, Roser Torra, J. Vicenç Torregrosa, Sandra Torres-Sierra, Anna Vila-Santandreu, Ana Güell, Grupo T-CiS.bcn
Format: Article
Language:English
Published: Elsevier 2016-11-01
Series:Nefrología (English Edition)
Subjects:
Online Access:http://www.sciencedirect.com/science/article/pii/S2013251416301419