Development of the parental needs scale for rare diseases: a tool for measuring the supportive care needs of parents caring for a child with a rare disease

Lemuel J Pelentsov,1 Andrea L Fielder,2,3 Thomas A Laws,4 Adrian J Esterman1,2,5 1School of Nursing and Midwifery, 2Sansom Institute for Health Research, 3School of Pharmacy and Medical Sciences, University of South Australia, Adelaide, SA, Australia; 4School of Nursing and Midwifery, Faculty of Hea...

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Bibliographic Details
Main Authors: Pelentsov LJ, Fielder AL, Laws TA, Esterman AJ
Format: Article
Language:English
Published: Dove Medical Press 2016-09-01
Series:Journal of Multidisciplinary Healthcare
Subjects:
Online Access:https://www.dovepress.com/development-of-the-parental-needs-scale-for-rare-diseases-a-tool-for-m-peer-reviewed-article-JMDH