Health-related quality of life in Marfan syndrome: a 10-year follow-up
Abstract Background Marfan syndrome, a rare hereditary connective tissue disorder caused by mutations in fibrillin-1, can affect many organ systems, especially the cardiovascular system. Previous research has paid less attention to health-related quality of life and prospective studies on this topic...
Main Authors: | Thy Thy Vanem, Svend Rand-Hendriksen, Cathrine Brunborg, Odd Ragnar Geiran, Cecilie Røe |
---|---|
Format: | Article |
Language: | English |
Published: |
BMC
2020-12-01
|
Series: | Health and Quality of Life Outcomes |
Subjects: | |
Online Access: | https://doi.org/10.1186/s12955-020-01633-4 |
Similar Items
-
Surgical outcome of scoliosis in Marfan syndrome: a case series report
by: komang agung irianto, et al.
Published: (2018-04-01) -
RESULTADOS A CORTO Y MEDIANO PLAZOS DE LA CIRUGÍA DE LA AORTA ASCENDENTE EN EL SÍNDROME DE MARFAN / Short and medium term outcomes of ascending aorta surgery in Marfan Syndrome
by: Lázaro Aldama Pérez, et al.
Published: (2013-04-01) -
The Effect of Cognitive-Behavioral Therapy on Acromegalics After a 9-Month Follow-Up
by: Lia Silvia Kunzler, et al.
Published: (2019-06-01) -
Predictors of Health-Related Quality of Life and Influencing Factors for COVID-19 Patients, a Follow-Up at One Month
by: Ke-Yang Chen, et al.
Published: (2020-07-01) -
Marfan and Marfan-like syndromes
by: J. De Backer, et al.
Published: (2009-03-01)