Health-related quality of life in Marfan syndrome: a 10-year follow-up

Abstract Background Marfan syndrome, a rare hereditary connective tissue disorder caused by mutations in fibrillin-1, can affect many organ systems, especially the cardiovascular system. Previous research has paid less attention to health-related quality of life and prospective studies on this topic...

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Bibliographic Details
Main Authors: Thy Thy Vanem, Svend Rand-Hendriksen, Cathrine Brunborg, Odd Ragnar Geiran, Cecilie Røe
Format: Article
Language:English
Published: BMC 2020-12-01
Series:Health and Quality of Life Outcomes
Subjects:
Online Access:https://doi.org/10.1186/s12955-020-01633-4