Optimizing language for effective communication of gene therapy concepts with hemophilia patients: a qualitative study

Optimizing language for effective communication of gene therapy concepts with hemophilia patients: a qualitative study

Abstract Background For communities of people living with hemophilia and other genetic conditions, gene therapy could represent a paradigm shift in treatment strategies. As investigational therapeutic modalities such as gene therapy become more widely used and discussed, there is a critical need for...

Full description

Bibliographic Details
Main Authors: Daniel P. Hart, Brian R. Branchford, Sarah Hendry, Robert Ledniczky, Robert F. Sidonio, Claude Négrier, Michelle Kim, Michelle Rice, Matthew Minshall, Claire Arcé, Steve Prince, Maria Kelleher, Sharon Lee
Format: Article
Language:English
Published: BMC 2021-04-01
Series:Orphanet Journal of Rare Diseases
Subjects:
Gene therapy
Gene transfer
Adeno-associated virus (AAV)
Hemophilia A
Vocabulary
Language
Online Access:https://doi.org/10.1186/s13023-020-01555-w

Internet

https://doi.org/10.1186/s13023-020-01555-w

Similar Items