The Global Prader–Willi Syndrome Registry: Development, Launch, and Early Demographics
Advances in technologies offer new opportunities to collect and integrate data from a broad range of sources to advance the understanding of rare diseases and support the development of new treatments. Prader−Willi syndrome (PWS) is a rare, complex neurodevelopmental disorder, which has a...
Main Authors: | , , , |
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Format: | Article |
Language: | English |
Published: |
MDPI AG
2019-09-01
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Series: | Genes |
Subjects: | |
Online Access: | https://www.mdpi.com/2073-4425/10/9/713 |