The Global Prader–Willi Syndrome Registry: Development, Launch, and Early Demographics

Advances in technologies offer new opportunities to collect and integrate data from a broad range of sources to advance the understanding of rare diseases and support the development of new treatments. Prader−Willi syndrome (PWS) is a rare, complex neurodevelopmental disorder, which has a...

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Bibliographic Details
Main Authors: Jessica Bohonowych, Jennifer Miller, Shawn E. McCandless, Theresa V. Strong
Format: Article
Language:English
Published: MDPI AG 2019-09-01
Series:Genes
Subjects:
Online Access:https://www.mdpi.com/2073-4425/10/9/713