Recommendations for centres of expertise in rare anaemias. The ENERCA White Book

Recommendations for centres of expertise in rare anaemias. The ENERCA White Book

The Community added value of Centres of Expertise (CoE) and European Reference Networks (ERN) is particularly high for rare diseases (RD) due to the rarity of these conditions, which implies both a small number of patients and scarcity of expertise within a single country. Gathering expertise at the...

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Bibliographic Details
Main Authors: Joan-Lluis Vives Corrons, María del Mar Mañú Pereira, Carlos Romeo-Casabona, Pilar Nicolás, Béatrice Gulbis, Androulla Eleftheriou, Michael Angastiniotis, Patricia Aguilar Martínez, Paola Bianchi, Richard Van Wijk, Hermann Heimpel, Barbara De la Salle, Andrea Mosca
Format: Article
Language:English
Published: PAGEPress Publications 2014-12-01
Series:Thalassemia Reports
Subjects:
rare anaemias
ENERCA
Europe
public health policies
haemoglobinopathies.
Online Access:http://www.pagepressjournals.org/index.php/thal/article/view/4878

Internet

http://www.pagepressjournals.org/index.php/thal/article/view/4878

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