A study protocol for quantifying patient preferences in neuromuscular disorders: a case study of the IMI PREFER Project [version 1; peer review: 2 approved]

Objectives: Patient preference studies are increasingly used to inform decision-making during the medical product lifecycle but are rarely used to inform early stages of drug development.  The primary aim of this study is to quantify treatment preferences of patients with neuromuscular disorders, wh...

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Main Authors: Aura Cecilia Jimenez-Moreno, Cathy Anne Pinto, Bennett Levitan, Chiara Whichello, Christine Dyer, Eline Van Overbeeke, Esther de Bekker-Grob, Ian Smith, Isabelle Huys, Jennifer Viberg Johansson, Kate Adcock, Kristin Bullock, Vikas Soekhai, Zhong Yuan, Hanns Lochmuller, Ardine de Wit, Grainne S. Gorman
Format: Article
Language:English
Published: Wellcome 2020-10-01
Series:Wellcome Open Research
Online Access:https://wellcomeopenresearch.org/articles/5-253/v1