The Evaluation of Health-Related Quality of Life Issues Experienced by Patients with Desmoid-Type Fibromatosis (The QUALIFIED Study)—A Protocol for an International Cohort Study

The Evaluation of Health-Related Quality of Life Issues Experienced by Patients with Desmoid-Type Fibromatosis (The QUALIFIED Study)—A Protocol for an International Cohort Study

Sporadic desmoid-type fibromatosis (DTF) is a rare soft tissue tumour with an unpredictable clinical course. These tumours are incapable of metastasising, but their local aggressive tumour growth and tendency to recur locally can result in a substantial symptom burden. Measuring the impact of DTF on...

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Bibliographic Details
Main Authors: Anne-Rose W. Schut, Milea J. M. Timbergen, Emma Lidington, Dirk J. Grünhagen, Winette T. A. van der Graaf, Stefan Sleijfer, Winan J. van Houdt, Johannes J. Bonenkamp, Eugenie Younger, Alison Dunlop, Robin L. Jones, Cornelis Verhoef, Spyridon Gennatas, Olga Husson
Format: Article
Language:English
Published: MDPI AG 2021-06-01
Series:Cancers
Subjects:
desmoid-type fibromatosis
rare diseases
health-related quality of life
patient-reported outcomes
disease-specific measures
symptoms
Online Access:https://www.mdpi.com/2072-6694/13/13/3068

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https://www.mdpi.com/2072-6694/13/13/3068

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