Disclosure to genetic relatives without consent – Australian genetic professionals’ awareness of the health privacy law

Abstract Background When a genetic mutation is identified in a family member (proband), internationally, it is usually the proband’s or another responsible family member’s role to disclose the information to at-risk relatives. However, both active and passive non-disclosure in families occurs: choos...

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Bibliographic Details
Main Authors: Natalia Meggiolaro, Kristine Barlow-Stewart, Kate Dunlop, Ainsley J. Newson, Jane Fleming
Format: Article
Language:English
Published: BMC 2020-02-01
Series:BMC Medical Ethics
Subjects:
Online Access:https://doi.org/10.1186/s12910-020-0451-1