A European Network of Email and Telephone Help Lines Providing Information and Support on Rare Diseases: Results From a 1-Month Activity Survey

BackgroundInformation on rare diseases are often complex to understand, or difficult to access and additional support is often necessary. Rare diseases helplines work together across Europe to respond to calls and emails from the public at large, including patients, health ca...

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Bibliographic Details
Main Authors: Houyez, Francois, Sanchez de Vega, Rosa, Brignol, Tuy Nga, Mazzucato, Monica, Polizzi, Agata
Format: Article
Language:English
Published: JMIR Publications 2014-05-01
Series:Interactive Journal of Medical Research
Online Access:http://www.i-jmr.org/2014/2/e9/