Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

Italian translation, cultural adaptation, and pilot testing of a questionnaire to assess family burden in inherited ichthyoses

Abstract Background Inherited ichthyoses are rare disorders characterized by generalized skin scaling. Among them, autosomal recessive congenital ichthyoses (ARCI) form a major subgroup presenting lifelong and severely disabling cutaneous and extracutaneous features and symptoms for which no curativ...

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Bibliographic Details
Main Authors: May El Hachem, Damiano Abeni, Andrea Diociaiuti, Roberta Rotunno, Francesco Gesualdo, Giovanna Zambruno, Christine Bodermer
Format: Article
Language:English
Published: BMC 2019-02-01
Series:Italian Journal of Pediatrics
Subjects:
Inherited ichthyosis
Autosomal recessive congenital ichthyosis (ARCI)
Quality of life
Family burden
Dermatology
Online Access:http://link.springer.com/article/10.1186/s13052-019-0618-x

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http://link.springer.com/article/10.1186/s13052-019-0618-x

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