Balancing the local and the universal in maintaining ethical access to a genomics biobank

Balancing the local and the universal in maintaining ethical access to a genomics biobank

Abstract Background Issues of balancing data accessibility with ethical considerations and governance of a genomics research biobank, Generation Scotland, are explored within the evolving policy landscape of the past ten years. During this time data sharing and open data access have become increasin...

Full description

Bibliographic Details
Main Authors: Catherine Heeney, Shona M. Kerr
Format: Article
Language:English
Published: BMC 2017-12-01
Series:BMC Medical Ethics
Subjects:
Data access
Informed consent
Biobank
Research ethics
Genomics
Online Access:http://link.springer.com/article/10.1186/s12910-017-0240-7

Internet

http://link.springer.com/article/10.1186/s12910-017-0240-7

Similar Items