The Creation Of The National Registry Of Rare Diseases In The Slovak Republic
The creation of a registry of patients with rare diseases is a priority of the National Strategy for Rare Diseases as well as of the National Plan for Rare Diseases. Knowledge of the real number of patients with rare diseases would thus, in addition to basic clinical information, represent an import...
| Main Authors: | , |
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| Format: | Article |
| Language: | English |
| Published: |
Sciendo
2014-08-01
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| Series: | Acta Facultatis Pharmaceuticae Universitatis Comenianae |
| Subjects: | |
| Online Access: | https://doi.org/10.2478/afpuc-2014-0005 |