The Core Outcome DEvelopment for Carrier Screening (CODECS) study: protocol for development of a core outcome set

The Core Outcome DEvelopment for Carrier Screening (CODECS) study: protocol for development of a core outcome set

Abstract Background Reproductive genetic carrier screening is a type of genetic testing available to those planning a pregnancy, or during their first trimester, to understand their risk of having a child with a severe genetic condition. There is a lack of consensus for ‘what to measure’ in studies...

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Bibliographic Details
Main Authors: Ebony Richardson, Alison McEwen, Toby Newton-John, Karine Manera, Chris Jacobs
Format: Article
Language:English
Published: BMC 2021-07-01
Series:Trials
Subjects:
Core outcome set
Reproductive genetic carrier screening
Genetic counselling
Patient-reported outcomes
Qualitative research
Delphi survey
Online Access:https://doi.org/10.1186/s13063-021-05439-7

Internet

https://doi.org/10.1186/s13063-021-05439-7

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