Health-related quality of life in children and adolescents living with Gaucher disease and their parents
Objective: The health-related quality of life (HRQoL), clinical status and perceived burden of disease in children and adolescents with Gaucher Disease (GD) were assessed. Method: A Spanish multicenter collaboration study involving 13 hospitals was performed to evaluate pediatric patients with GD (n...
Main Authors: | , |
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Format: | Article |
Language: | English |
Published: |
Taylor & Francis Group
2018-01-01
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Series: | Health Psychology and Behavioral Medicine |
Subjects: | |
Online Access: | http://dx.doi.org/10.1080/21642850.2018.1462705 |