Quality of life in mucopolysaccharidoses: construction of a specific measure using the focus group technique

Quality of life in mucopolysaccharidoses: construction of a specific measure using the focus group technique

Abstract Objective To describe the perceptions of patients, their caregivers, and their healthcare providers to the development of a new specific instrument for assessment of the quality of life (QoL) in patients with mucopolysaccharidoses (MPS) using a qualitative focus group (FG) design. FGs were...

Full description

Bibliographic Details
Main Authors: M. R. Oliveira, I. Schwartz, L. S. Costa, H. Maia, M. Ribeiro, L. B. Guerreiro, A. Acosta, N. S. Rocha
Format: Article
Language:English
Published: BMC 2018-01-01
Series:BMC Research Notes
Subjects:
Mucopolysaccharidoses
Focus group
Scale development
Disease-specific QoL measure
Online Access:http://link.springer.com/article/10.1186/s13104-018-3157-4

Internet

http://link.springer.com/article/10.1186/s13104-018-3157-4

Similar Items