The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?

The impact of long-term ventilator-use on health-related quality of life and the mental health of children with neuromuscular diseases and their families: need for a revised perspective?

Abstract Background Life extension by medical interventions and health-related quality of life (HRQOL) are sometimes conflicting aspects of medical care. Long-term ventilation in children with neuromuscular disease is a well-established life-extending procedure and often at the center of this confli...

Full description

Bibliographic Details
Main Authors: Jessika Johannsen, Lena Fuhrmann, Benjamin Grolle, Lydia Morgenstern, Silke Wiegand-Grefe, Jonas Denecke
Format: Article
Language:English
Published: BMC 2020-07-01
Series:Health and Quality of Life Outcomes
Online Access:http://link.springer.com/article/10.1186/s12955-020-01467-0

Internet

http://link.springer.com/article/10.1186/s12955-020-01467-0

Similar Items