Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions

Cystic fibrosis (CF) is a chronic, life-threatening disease, similar to other chronic life-disrupting pediatric conditions, and this creates physical and psychosocial problems for parents and the healthy sibling/s of the sick child, who often become sibling carers. It is feared that, despite good in...

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Bibliographic Details
Main Authors: Andrew Cox MA, Colin Pritchard
Format: Article
Language:English
Published: SAGE Publishing 2020-12-01
Series:Journal of Patient Experience
Online Access:https://doi.org/10.1177/2374373520948652