Hearing the Voice of a Shadow Child: Healthy Siblings Experience of Cystic Fibrosis and Other Life-Threatening Conditions
Cystic fibrosis (CF) is a chronic, life-threatening disease, similar to other chronic life-disrupting pediatric conditions, and this creates physical and psychosocial problems for parents and the healthy sibling/s of the sick child, who often become sibling carers. It is feared that, despite good in...
Main Authors: | , |
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Format: | Article |
Language: | English |
Published: |
SAGE Publishing
2020-12-01
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Series: | Journal of Patient Experience |
Online Access: | https://doi.org/10.1177/2374373520948652 |