Practical Barriers and Ethical Challenges in Genetic Data Sharing

Practical Barriers and Ethical Challenges in Genetic Data Sharing

The underlying ethos of dbGaP is that access to these data by secondary data analysts facilitates advancement of science. NIH has required that genome-wide association study data be deposited in the Database of Genotypes and Phenotypes (dbGaP) since 2003. In 2013, a proposed updated policy extended...

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Bibliographic Details
Main Authors: Claire L. Simpson, Aaron J. Goldenberg, Rob Culverhouse, Denise Daley, Robert P. Igo, Gail P. Jarvik, Diptasri M. Mandal, Deborah Mascalzoni, Courtney Gray Montgomery, Brandon Pierce, Rosemarie Plaetke, Sanjay Shete, Katrina A. B. Goddard, Catherine M. Stein
Format: Article
Language:English
Published: MDPI AG 2014-08-01
Series:International Journal of Environmental Research and Public Health
Subjects:
data sharing
identifiability
GWAS
ELSI
ethics
publication embargo
collaboration
Online Access:http://www.mdpi.com/1660-4601/11/8/8383

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http://www.mdpi.com/1660-4601/11/8/8383

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