Psychosocial Considerations for Children and Adolescents Living with Rare Diseases

Psychosocial Considerations for Children and Adolescents Living with Rare Diseases

This Special Issue of the journal Children constitutes an opportune moment to reflect on the psychosocial needs of children living with rare diseases and of their families. As medical advances, treatments, and developments have enabled many of these children to survive infancy and to live into adult...

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Bibliographic Details
Format: eBook
Language:English
Published: MDPI - Multidisciplinary Digital Publishing Institute 2022
Subjects:
Psychology
adaptation
adolescents
adolescents and young adults
advance care planning
advocacy
age-appropriate
AYA transition
Beckwith-Wiedemann syndrome
bereavement
cancer
care coordination
caregiving
childhood cancer
children
chronic illness
cognitive functions
communication
compassionate communities
complex chronic conditions
decision-making
development
E-IMD
emotional-behavioral problems
emotions
end-of-life care
equity
families
family burden
family caregiver
family caregivers
gender differences
genetic or rare diseases
health outcomes
healthcare needs
illness perception
inherited metabolic diseases
interventions
life-limiting conditions
medical complexity
medullary thyroid carcinoma
n/a
neoplasm
oncology
palliative care
parental need
parenting stress
parents
pediatric
pediatric chronic illness
pediatric to adult transition
pediatrics
policy
preschool-age children
psychological
psychomotor development
psychosocial
psychosocial care
psychosocial difficulties
psychosocial distress
psychosocial support
public health approach
rare disease
rare diseases
sibling
siblings
social adjustment
social support
special needs
transition readiness
urea cycle disorders
young adults
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