The urgent need to empower rare disease organizations in China: an interview-based study

by Xuefeng Li, Zijuan Lu, Jianyong Zhang, Xiangyu Zhang, Shu Zhang, Jincheng Zhou, Bingzhe Li, Li Ou
Published 2020-10-01

Rare disease awareness and perspectives of physicians in China: a questionnaire-based study

by Xuefeng Li, Xiangyu Zhang, Shu Zhang, Zijuan Lu, Jianyong Zhang, Jincheng Zhou, Bingzhe Li, Li Ou
Published 2021-04-01

A questionnaire-based study to comprehensively assess the status quo of rare disease patients and care-givers in China

by Xuefeng Li, Meiling Liu, Jinduan Lin, Bingzhe Li, Xiangyu Zhang, Shu Zhang, Zijuan Lu, Jianyong Zhang, Jincheng Zhou, Li Ou
Published 2021-07-01