Using Social Media to Conduct Outreach and Recruitment for Expanded Newborn Screening

by Jamie Guillory, Alyssa Jordan, Ryan S. Paquin, Jessica Pikowski, Stephanie McInnis, Amarachi Anakaraonye, Holly L. Peay, Megan A. Lewis
Published 2020-05-01

Patients’ and caregivers’ maximum acceptable risk of death for non‐curative gene therapy to treat Duchenne muscular dystrophy

by Holly L. Peay, Ryan Fischer, Brennan Mange, Ryan S. Paquin, Edward C. Smith, Alesia Sadosky, Leo Russo, Valeria Ricotti, Colin Rensch, Carl Morris, Amy Strong Martin, Annie Ganot, Katherine Beaverson, Carol Mansfield
Published 2021-05-01

Priorities when deciding on participation in early-phase gene therapy trials for Duchenne muscular dystrophy: a best–worst scaling experiment in caregivers and adult patients

by Ryan S. Paquin, Ryan Fischer, Carol Mansfield, Brennan Mange, Katherine Beaverson, Annie Ganot, Amy Strong Martin, Carl Morris, Colin Rensch, Valeria Ricotti, Leo J. Russo, Alesia Sadosky, Edward C. Smith, Holly L. Peay
Published 2019-05-01

Evaluating parents’ decisions about next-generation sequencing for their child in the NC NEXUS (North Carolina Newborn Exome Sequencing for Universal Screening) study: a randomized...

by Laura V. Milko, Christine Rini, Megan A. Lewis, Rita M. Butterfield, Feng-Chang Lin, Ryan S. Paquin, Bradford C. Powell, Myra I. Roche, Katherine J. Souris, Donald B. Bailey, Jonathan S. Berg, Cynthia M. Powell
Published 2018-06-01

Outreach to new mothers through direct mail and email: recruitment in the Early Check research study

by Ryan S. Paquin, Megan A. Lewis, Blake A. Harper, Rebecca R. Moultrie, Angela Gwaltney, Lisa M. Gehtland, Holly L. Peay, Martin Duparc, Melissa Raspa, Anne C. Wheeler, Cynthia M. Powell, Nancy M. P. King, Scott M. Shone, Donald B. Bailey Jr
Published 2021-05-01

Early Check: translational science at the intersection of public health and newborn screening

by Donald B. Bailey, Lisa M. Gehtland, Megan A. Lewis, Holly Peay, Melissa Raspa, Scott M. Shone, Jennifer L. Taylor, Anne C. Wheeler, Michael Cotten, Nancy M. P. King, Cynthia M. Powell, Barbara Biesecker, Christine E. Bishop, Beth Lincoln Boyea, Martin Duparc, Blake A. Harper, Alex R. Kemper, Stacey N. Lee, Rebecca Moultrie, Katherine C. Okoniewski, Ryan S. Paquin, Denise Pettit, Katherine Ackerman Porter, Scott J. Zimmerman
Published 2019-07-01