Coping with Wolf-Hirschhorn syndrome: quality of life and psychosocial features of family carers

by Sarah Berrocoso, Imanol Amayra, Esther Lázaro, Oscar Martínez, Juan Francisco López-Paz, Maitane García, Manuel Pérez, Mohammad Al-Rashaida, Alicia Aurora Rodríguez, Paula Maria Luna, Paula Pérez-Núñez, Raquel Blanco, Julián Nevado
Published 2020-10-01

Diseases Costs and Impact of the Caring Role on Informal Carers of Children with Neuromuscular Disease

by Alicia Aurora Rodríguez, Óscar Martínez, Imanol Amayra, Juan Francisco López-Paz, Mohammad Al-Rashaida, Esther Lázaro, Patricia Caballero, Manuel Pérez, Sarah Berrocoso, Maitane García, Paula María Luna, Paula Pérez-Núñez, Nicole Passi
Published 2021-03-01

Effects of Teleassistance on the Quality of Life of People With Rare Neuromuscular Diseases According to Their Degree of Disability

by Oscar Martínez, Imanol Amayra, Juan Francisco López-Paz, Esther Lázaro, Patricia Caballero, Irune García, Alicia Aurora Rodríguez, Maitane García, Paula María Luna, Paula Pérez-Núñez, Jaume Barrera, Nicole Passi, Sarah Berrocoso, Manuel Pérez, Mohammad Al-Rashaida
Published 2021-03-01