Marfan syndrome in childhood: parents’ perspectives of the impact on daily functioning of children, parents and family; a qualitative study

by Jessica Warnink-Kavelaars, Anita Beelen, Sarah Dekker, Frans Nollet, Leonie A. Menke, Raoul H. H. Engelbert
Published 2019-07-01

Heritable Connective Tissue Disorders in Childhood: Increased Fatigue, Pain, Disability and Decreased General Health

by Jessica Warnink-Kavelaars, Lisanne E. de Koning, Lies Rombaut, Mattijs W. Alsem, Leonie A. Menke, Jaap Oosterlaan, Annemieke I. Buizer, Raoul H. H. Engelbert, on behalf of the Pediatric Heritable Connective Tissue Disorders Study Group
Published 2021-05-01