Translating patient-reported outcome measures: a multi-step process is essential

by Catherine Acquadro, Ana Bayles, Elizabeth Juniper
Published 2014-06-01

To what degree are orphan drugs patient-centered? A review of the current state of clinical research in rare diseases

by Sally Lanar, Catherine Acquadro, James Seaton, Isabelle Savre, Benoit Arnould
Published 2020-06-01

Assessing patients’ acceptance of their medication to reveal unmet needs: results from a large multi-diseases study using a patient online community

by Jérémy Lambert, Michael Chekroun, Hélène Gilet, Catherine Acquadro, Benoit Arnould
Published 2018-07-01

Good practices for the translation, cultural adaptation, and linguistic validation of clinician-reported outcome, observer-reported outcome, and performance outcome measures

by Shawn McKown, Catherine Acquadro, Caroline Anfray, Benjamin Arnold, Sonya Eremenco, Christelle Giroudet, Mona Martin, Dana Weiss
Published 2020-11-01

Integrating Qualitative and Quantitative Data in the Development of Outcome Measures: The Case of the Recovering Quality of Life (ReQoL) Measures in Mental Health Populations

by Anju Devianee Keetharuth, Elizabeth Taylor Buck, Catherine Acquadro, Katrin Conway, Janice Connell, Michael Barkham, Jill Carlton, Thomas Ricketts, Rosemary Barber, John Brazier
Published 2018-06-01

Developing fit-for-purpose self-report instruments for assessing consumer responses to tobacco and nicotine products: the ABOUT™ Toolbox initiative [version 1; referees: 2 approved...

by Christelle Chrea, Catherine Acquadro, Esther F. Afolalu, Erica Spies, Thomas Salzberger, Linda Abetz-Webb, Stefan Cano, Benoit Arnould, Nelly Mainy, Jed Rose, Rolf Weitkunat
Published 2018-12-01

Reflection paper on copyright, patient-reported outcome instruments and their translations

by Caroline Anfray, Benjamin Arnold, Mona Martin, Sonya Eremenco, Donald L. Patrick, Katrin Conway, Catherine Acquadro, on behalf of the ISOQOL Translation and Cultural Special Interest Group (TCA-SIG)
Published 2018-12-01

Emerging good practices for Translatability Assessment (TA) of Patient-Reported Outcome (PRO) measures

by Catherine Acquadro, Donald L. Patrick, Sonya Eremenco, Mona L. Martin, Dagmara Kuliś, Helena Correia, Katrin Conway, on behalf of the International Society for Quality of Life Research (ISOQOL) Translation and Cultural Adaptation Special Interest Group (TCA-SIG)
Published 2018-02-01