COVID-PCD: a participatory research study on the impact of COVID-19 in people with primary ciliary dyskinesia

by Eva S.L. Pedersen, Eugénie N.R. Collaud, Rebeca Mozun, Cristina Ardura-Garcia, Yin Ting Lam, Amanda Harris, Jane S. Lucas, Fiona Copeland, Michele Manion, Bernhard Rindlisbacher, Hansruedi Silberschmidt, Myrofora Goutaki, Claudia E. Kuehni
Published 2021-03-01

Access to medicines for rare diseases: beating the drum for primary ciliary dyskinesia

by Suzanne Crowley, Inês Azevedo, Mieke Boon, Andrew Bush, Ernst Eber, Eric Haarman, Bulent Karadag, Karsten Kötz, Margaret Leigh, Antonio Moreno-Galdó, Huda Mussaffi, Kim G. Nielsen, Heymut Omran, Jean-François Papon, Petr Pohunek, Kostas Priftis, Bernhard Rindlisbacher, Francesca Santamaria, Arunas Valiulis, Michal Witt, Panayiotis Yiallouros, Zorica Zivkovic, Claudia E. Kuehni, Jane S. Lucas
Published 2020-09-01

International BEAT-PCD consensus statement for infection prevention and control for primary ciliary dyskinesia in collaboration with ERN-LUNG PCD Core Network and patient represent...

by June K. Marthin, Jane S. Lucas, Mieke Boon, Carmen Casaulta, Suzanne Crowley, Damien M.S. Destouches, Ernst Eber, Amparo Escribano, Eric Haarman, Claire Hogg, Bernard Maitre, Gemma Marsh, Vendula Martinu, Antonio Moreno-Galdó, Huda Mussaffi, Heymut Omran, Petr Pohunek, Bernhard Rindlisbacher, Phil Robinson, Deborah Snijders, Woolf T. Walker, Panayiotis Yiallouros, Helle Krogh Johansen, Kim G. Nielsen
Published 2021-08-01