The Role of Parent/Caregiver with Children Affected by Rare Diseases: Navigating between Love and Fear

by Beni Gómez-Zúñiga, Rafael Pulido, Modesta Pousada, Manuel Armayones
Published 2021-04-01

El uso de Facebook en asociaciones españolas de enfermedades raras: ¿cómo y para qué lo utilizan?

by Manuel Armayones, Samantha Requena, Beni Gómez-Zúñiga, Modesta Pousada, Antonio M. Bañón
Published 2015-09-01

Mining Facebook Data of People with Rare Diseases: A Content-Based and Temporal Analysis

by Laia Subirats, Natalia Reguera, Antonio Miguel Bañón, Beni Gómez-Zúñiga, Julià Minguillón, Manuel Armayones
Published 2018-08-01

The experience of parents of children with rare diseases when communicating with healthcare professionals: towards an integrative theory of trust

by Beni Gómez-Zúñiga, Rafael Pulido Moyano, Modesta Pousada Fernández, Alicia García Oliva, Manuel Armayones Ruiz
Published 2019-06-01

Improving the Quality of Life of Family Caregivers of People with Alzheimer’s Disease through Virtual Communities of Practice: A Quasiexperimental Study

by Montse Romero-Mas, Anna Ramon-Aribau, Dyego Leandro Bezerra de Souza, Andrew M. Cox, Beni Gómez-Zúñiga
Published 2021-01-01