Development of an observational registry for genetic hypophosphatemia and acquired renal phosphate wasting in The Netherlands: ORPHOS-NED

by Ariadne Bosman, Natasha Appelman-Dijkstra, Joop van den Bergh, Arend Bökenkamp, Annemieke Boot, Martin de Borst, Bram van der Eerden, M. Carola Zillikens
Published 2021-04-01

The international X-linked hypophosphataemia (XLH) registry (NCT03193476): rationale for and description of an international, observational study

by Raja Padidela, Ola Nilsson, Outi Makitie, Signe Beck-Nielsen, Gema Ariceta, Dirk Schnabel, Maria Luisa Brandi, Annemieke Boot, Elena Levtchenko, Michael Smyth, Ravi Jandhyala, Zulf Mughal
Published 2020-06-01