Patient-reported data informing early benefit assessment of rare diseases in Germany: A systematic review

by Ana Babac, Kathrin Damm, J.-Matthias Graf von der Schulenburg
Published 2019-12-01

Relieving distressed caregivers (ReDiCare study): study protocol of a randomized pragmatic trial

by Klaus Pfeiffer, Christina Theurer, Gisela Büchele, Ana Babac, Helene Dick, Gabriele Wilz, the ReDiCare study group
Published 2021-01-01

Integrating patient perspectives in medical decision-making: a qualitative interview study examining potentials within the rare disease information exchange process in practice

by Ana Babac, Verena von Friedrichs, Svenja Litzkendorf, Jan Zeidler, Kathrin Damm, J.-Matthias Graf von der Schulenburg
Published 2019-09-01

Use and importance of different information sources among patients with rare diseases and their relatives over time: a qualitative study

by Svenja Litzkendorf, Martin Frank, Ana Babac, Daniel Rosenfeldt, Franziska Schauer, Tobias Hartz, J.-Matthias Graf von der Schulenburg
Published 2020-06-01

Telephone health services in the field of rare diseases: a qualitative interview study examining the needs of patients, relatives, and health care professionals in Germany

by Ana Babac, Martin Frank, Frédéric Pauer, Svenja Litzkendorf, Daniel Rosenfeldt, Verena Lührs, Lisa Biehl, Tobias Hartz, Holger Storf, Franziska Schauer, Thomas O. F. Wagner, J-Matthias Graf von der Schulenburg
Published 2018-02-01