Improving clinical trial readiness to accelerate development of new therapeutics for Rett syndrome

by Benke, T., Downs, J., Gold, W., Leonard, H., Sahin, M., Samaco, R.
Published 2022

AMCP Partnership Forum: Preparing for and managing rare diseases

by Banks, A., Berry, D., Bioc, J., Cashman, L., Chambers, J., Ciarametaro, M., Day, J., Ferrell, S., Gbolahan, J., Giambalvo, D., Goldfarb, N., Gregor, K., Guinther, C., Harman, M., Hoffman, D., Hubbard, T., Jeffrey, P., Jolly, J., Kennedy, A., Khachatourian, K.W, Kobernick, M., Koch, T., Koenig, T., Ladikos, N., Leonard, M., Liu, Y., Lopata, E., Newman, J., Niles, A., Odem, H., Oehrlein, E.M, Patel, J., Raetz, K., Richmond, W., Trusheim, M.
Published 2021

Patients' Views about Patient Engagement and Representation in Healthcare Governance

by Berkowitz, S.A, DeCamp, M., Dukhanin, V., Feeser, S., Hebert, L.C, Himmelrich, S.
Published 2019

Examining Physician Interactions with Disease Advocacy Organizations

by Cosenza, C., Horrow, C., Pacyna, J.E, Sharp, R.R
Published 2019

The Role of the Chaplain as a Patient Navigator and Advocate for Patients in the Intensive Care Unit: One Academic Medical Center’s Experience

by Furqan, M.M, Kraeuter, S., Scott, W., Teague, P., York, S., Zakaria, S.
Published 2019