Problems of adults with mitochondrial disease - the patient's perspective: focus on loss

Objective: This study aimed to identify problems as experienced by adults with a mitochondrial disease. We chose to describe these problems from the patients' perspective as we thought this would give optimal input for care improvement. Design: A qualitative design using the grounded theory ap...

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Bibliographic Details
Main Authors: Noorda, Greet (Author), Van Achterberg, Theo (Author), Van der Hooft, Truus (Author), Smeitink, Jan (Author), Schoonhoven, Lisette (Author), Van Engelen, Baziel (Author)
Format: Article
Language:English
Published: 2012.
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