Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia

The birth of a child diagnosed with congenital diaphragmatic hernia (CDH) involves significant intensive care at the beginning of life and the need for surgery. Parents’ experiences during the acute phase of hospitalization for a critically ill infant not born premature is currently limited in the l...

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Bibliographic Details
Main Author: Lusney, Nadine
Other Authors: Marcellus, Lenora
Language:en
Published: 2014
Subjects:
Online Access:http://hdl.handle.net/1828/5229
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spelling ndltd-uvic.ca-oai-dspace.library.uvic.ca-1828-52292015-06-06T16:58:24Z Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia Lusney, Nadine Marcellus, Lenora NICU Neonatal Intensive Care Unit Narrative Inquiry Congenital Diaphragmatic Hernia Parents' Experiences The birth of a child diagnosed with congenital diaphragmatic hernia (CDH) involves significant intensive care at the beginning of life and the need for surgery. Parents’ experiences during the acute phase of hospitalization for a critically ill infant not born premature is currently limited in the literature; in particular, there is no literature describing parents’ experiences of nursing care for having a infant with CDH in the Neonatal Intensive Care Unit (NICU). Using narrative inquiry this study explores stories of parents’ early experiences of nursing care in the NICU for an infant born with CDH. A thematic analysis revealed a main overarching theme of “not knowing” with three interrelated subthemes related to parents’ need for information and open communication; participation, power and partnership; and nursing presence to transition from not knowing to knowing their infant. The findings from this study suggest that parents want to be recognized as key members within the multidisciplinary team and that the nurse has the ability to facilitate aspects of care to impact parents positively or negatively. Implications for practice focus on supporting parents through evolving empowerment and participation in the care of their infant. Graduate 0569 2014-04-07T16:23:35Z 2014-04-07T16:23:35Z 2014 2014-04-07 Thesis http://hdl.handle.net/1828/5229 Lusney N, Albersheim S, Holsti L. Support needs for fathers of infants in the neonatal intensive care unit. Pediatric Academic Society, May 2011 en Available to the World Wide Web
collection NDLTD
language en
sources NDLTD
topic NICU
Neonatal Intensive Care Unit
Narrative Inquiry
Congenital Diaphragmatic Hernia
Parents' Experiences
spellingShingle NICU
Neonatal Intensive Care Unit
Narrative Inquiry
Congenital Diaphragmatic Hernia
Parents' Experiences
Lusney, Nadine
Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia
description The birth of a child diagnosed with congenital diaphragmatic hernia (CDH) involves significant intensive care at the beginning of life and the need for surgery. Parents’ experiences during the acute phase of hospitalization for a critically ill infant not born premature is currently limited in the literature; in particular, there is no literature describing parents’ experiences of nursing care for having a infant with CDH in the Neonatal Intensive Care Unit (NICU). Using narrative inquiry this study explores stories of parents’ early experiences of nursing care in the NICU for an infant born with CDH. A thematic analysis revealed a main overarching theme of “not knowing” with three interrelated subthemes related to parents’ need for information and open communication; participation, power and partnership; and nursing presence to transition from not knowing to knowing their infant. The findings from this study suggest that parents want to be recognized as key members within the multidisciplinary team and that the nurse has the ability to facilitate aspects of care to impact parents positively or negatively. Implications for practice focus on supporting parents through evolving empowerment and participation in the care of their infant. === Graduate === 0569
author2 Marcellus, Lenora
author_facet Marcellus, Lenora
Lusney, Nadine
author Lusney, Nadine
author_sort Lusney, Nadine
title Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia
title_short Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia
title_full Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia
title_fullStr Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia
title_full_unstemmed Stories of Early Experiences of Nursing Care in the Neonatal Intensive Care Unit from Parents' Whose Infants are born with Congenital Diaphragmatic Hernia
title_sort stories of early experiences of nursing care in the neonatal intensive care unit from parents' whose infants are born with congenital diaphragmatic hernia
publishDate 2014
url http://hdl.handle.net/1828/5229
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